Peter - Carepages - June 1st, 2007

Apologize for being so down yesterday, and wanted to make sure I got a new update out today. John got here around lunch time so I will take some photos and post them shortly too. Peter seems to be having a much better day today - thank you God! He is still struggling with his oxygen saturation rates, but no where close to yesterday. Yesterday he was constantly turning blue and really making everyone quite nervous. I got here around 9am today, and he has only had two "spells" so far. While it takes a bit to get him out of them, it is also not as long as 2 hours like his worse spell yesterday. He has also done pretty well with his feedings. While they have opted to not put Peter back on oxygen, he is back on a canula (nose tube) where they are blasting "wiffs" of room air to stimulate his breathing. At this time they feel his challenge is due to the fact that he is breathing too shallow. His chest x-ray shows not change in his lungs - therefore ruling out pulmonary edema. His echocardiogram shows no change in his heart condition. In addition to the wiffs of air they are putting him on caffeine to see if that keeps him stimulated while his body gets stronger and matures. Of course, I offered to just drink caffeinated Starbucks and pump it fresh for Peter, but they didn't take me up on the offer :-) At this time they are confident that this situation is temporary, as has been all the challenges Peter has had till now. If the caffeine doesn't work then we will need to re-evaluate. As alarming as this has been for me, all I need to do is look around at the other children here and realize how fortunate we are and how much we have to be thankful for each day. We continue to pray that Peter will get better and remember that this too shall pass and one day Peter will be home. Thank you for all your loving support! Big hugs! catherine & john