Wednesday, June 6, 2007

Peter - Carepages - June 6th, 2007

As I warned you all - no update yesterday. John and the kids got here mid morning and it was all go all day! It was so wonderful to see the kids again. Tommy seemed a little hesitant for about the first 30 seconds - as if saying "is that really you?". Then it was non-stop snuggle from there. He looks so big and has grown up so much in the past 3 weeks...his talking, taking charging, pushing around those in his way...hmmm...sounds familiar. Jack seems to have even more energy than ever - just bouncing off the walls with his endless zest for life. Michael looked so handsome with his 1st Communion haircut and was ready to be a big brother - taking turns holding and rocking Peter. Then Alexandra - can you really grow that fast? At 12.1/2 yrs she appears to be a smidge over 5'5"...almost looking me straight in the eye. She of course got some Peter time too! The nurses loaded Peter up in a stroller with oxygen in tow, and allowed us to go for a family walk around the hospital. Of course Peter pooped in his pants which made the trip a bit shorter than we had hoped. And, getting a family of seven, plus stroller, plus oxygen tank into an elevator was a challenge....had to wait for one empty enough we could all fit in it! All in all we had a great time. The hospital has a neat exhibit with balls on different tracks that loop around, bounce, knock and make bells ring, etc. No easy way to describe it but suffice to say the Mortimer engineering genes are running strong as all of them were entertained figuring it out for almost 2 hours! Peter saw less of me yesterday as the kids and I were out and about. It is as if he knew he was missing out on something because when he'd hear my voice he'd cry - as if saying "where have you been??!" After the family headed back down to the Springs I went back to snuggle little Peter. He rested his head on my chest, reached up his little arm and put it around my neck as if giving me a little hug. Talk about making your heart melt in 2 seconds flat! Peter continues to respond well to the oxygen. He is on so little he might as well be on room air, but that little wiff he's getting has kept his saturation rates higher and more stable. He got a reprieve from lab work today, so tomorrow we will know if his creatanine continued to drop. His weight isn't progressing quite as well, so today they are increasing the calories in the fortification of the breast milk. It is just such a relief to not have alarms going off every minute. To once again be able to just hold and hug my little man, and know that he is getting better. At this time can't predict what next week will bring, so more on that after the meeting on Monday. Next Wednesday I'm meeting with a group of folks to come up with a development plan for Peter from a therapy perspective so that we will have it to follow here and when we get home. It's all go! Must run get back to Peter! Thank you for all your great messages - keep them coming! They will be going down in history as I plan to include them all in Peter's baby book once I get home. :-) HUGS! catherine

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