Peter - Carepage - May 21st, 2007

Being with Peter is like being on a rollercoaster ride. I have strict instructions to keep my updates brief - but you all know how wordy I can get - but will give it a try! :-) Saturday Peter remained stable although we were concerned with his respiratory rate as it seems to be climbing. Despite our concerns, we were moved from the NICU to the ICC (Infant Care Center) due to some urgent needs with sicker babies (may God bless them and their families with healing!). Immediately after the move the new nurse was not happy with the respiratory rate either so finally a good look was given. He was placed on diuretics again with the hope of getting some fluid away from his lungs. The change was stressful for me - but we are over the anxiety of the change now. Sunday was a very relaxing day and Peter was very stable. Dr. Laura Brown came by several times and spent a long time letting me talk through what I felt was going on. I know she was very busy, but it was nice to feel like her only patient. All in all Peter looked well. His changes in oxygen and breathing patterns indicate he is getting over the pulmonary hypertension (PPHN)and as a result his heart condition (VSD) is kicking in. He has increased fluids to his lungs with the diuretics should help with. His enzyme tests came back abnormal on two indicators - so further review of his kidneys and liver were ordered. The ultrasound was done today and the results were good - so no need to worry there! Yeah!! Today Jacinto stopped by and that is always very comforting. He agreed that we are now trying to find the right balance between oxygen and diuretics to get Peter as healthy as possible. One step at a time! The encouraging news is that we may be able to take him home without oxygen. Yeah! The next step after getting the right balance for the VSD is to ensure he can eat and gain weight. John is the master of the bottle and Peter's biggest cheerleader in getting him to eat orally. I continue to pump like crazy - so it is a true team effort! The goal is to have Peter eating orally - but if that proves to take too long, they will evaluate sending him home with a feeding tube. We have no ETA for going home - but could be days to weeks....Mr. Peter will be dictating next steps and seems to be taking one challenge at a time. We are sooooo thankful for the healing God is bestowing on our little angel, and ask that you continue to pray for his healing. Although we are taking baby steps - each is a step closer to being home. We pray for his ongoing healing, and for a miracle to his little heart of gold. Thank you again for all your love, encouragement and support. We thank God daily for you all. Love, John & Catherine