Peter - Carepages - May 25th, 2007

Sorry this is a day late! Can we say "Dancing with Peter"??!! Mr. Peter Bear is dancing the waltz to his own music....some steps forward, some steps back and some graceful steps to the side. The doctors are still trying to figure out what music he's dancing to so that they can make him better. As I mentioned the big wins so far are he seems to be past his pulmonary hypertension and is no longer on oxygen! yeah!! Yesterday we were moved back to the NICU because Peter is having a little kidney failure. His sodium levels are off, and he has a high level of creatanin (sp?). While he should be at 0.9 or less, he has been climbing since he got here and this morning was at 3.5. The doctors are optimistic at this time that the kidney damage is temporary and reversible. While his levels have been increasing since we got to Childrens - and it is believed to be because of the diuretic treatments - there is good signs to this being temporary. His kidneys showed no sign of damage when he was in the Springs and his level was 0.7 upon arrival on 5/16. An ultrasound was performed on Monday of this week and there were no indications of lesions or damaged areas.....so we pray this is just a temporary situation with no long term effects on Peter. To treat the situation they are continuing to cut back on his fluids which as a parent is very scary to see your child eating less and less and continuing to loose weight. Despite loosing some of his baby fat in his face, and having skinny little chicken legs, I think Peter is noticing some of the cute young nurses around here. He is getting more charming and cute each day. Sorry no pictures to proove it - I sent the camera home with John so that he can capture memories of the kids first visit to the pool for this season. John is home again, and will be in the Springs till the latter part of next week. Besides caring for 4 VERY active kids - he is painting the basement (in case there are any volunteers to help him out), getting pieces and parts ordered and getting things in order over all. What a champ! I am so lucky to have John!! He is so capable and willing to doing everything that needs to be done so that I can spend my days cuddling little Peter. The library is closing early today and will be closed until Tuesday due to Memorial Day. We aren't sure yet when we will get our next update out. But please know that we continue to thank God every day for each and every one of you! Please continue to pray for Peter and for the doctors figuring out how to dance with our little man. Hope you all have a wonderful weekend. Lots of HUGS! God bless, Catherine & John