Peter - Carepages - May 23rd, 2007

Peter is 2 weeks today! It seems hard to believe - on one hand Peter is so new into our crazy world, but on the flip side we have gone through so much that it feels like a lifetime. We miss our kids terribly and John is torn about going home tomorrow for a week. He will have a great time taking the kids to the pool - and maybe trying to get the older kids over to see "Pirates of the Carribean". We are so greatful that John's parents and niece April have been able to watch the older 4 and keep them in their normal routines during this crazy time. Rollercoaster Peter is on a new adventure now! Today is his first day off of oxygen and he is maintaining his oxygen levels higher than they were wanting. He looks great and has been so much more active today - crying, playing, taking in the strange world around him. As I mentioned yesterday, we are starting to see the effects of his heart condition (VSD).....however, in true form - he is doing it all his own way. The lab results are showing abnormal product from his kidneys as well as some enzymes levels. He continues to loose weight due to the diuretics. The doctors are working closely together to figure out this little mystery named Peter. Because there are so many pieces factoring in to get him stable it feels like trying to fine tune a motor. They've decided to cut back on his fluid intake but adding formula to the breast milk to increase his caloric intake. We hope all these little adjustments will help us find the right approach to get Peter home. However, they will continue to monitor him to ensure we are headed in the right direction. As with any bodily function - at this time Peter should be able to recover from these set backs - but we need to ensure they are resolved so as to avoid long term effects to his brain, organs, etc. Please pray hard for this little man! If the doctors are unable to get the results they need, then there is a possibility of moving his heart surgery up so as to fix the root cause of all these problems. Holding our little boy in our arms, it seems hard to believe he is big enough to have his little heart fixed. But, on the other side, we so look forward to the day it is mended and we can put this time behind us. Thank you for all your prayers and support. Please spread the word that little Peter needs even more prayers for his healing, and wisdom for the medical professionals caring for him - we trust God is listening and answering our prayers in ways we may not understand and that one day this will be just a memory, a small part of our life journey. Love and blessings! John & Catherine

Peek-a-boo

I SEE YOU!