Peter Was Published!!
Hello!
So several different type of updates. First, I am working on getting our blog put back together. I am playing with the layout but the posts are there. I do have stuff on other kids there and will be putting them on more regularly now that we have a computer with some internet speed - yeah! There is also a way to subscribe so that you can get e-mail updates or other forms of notification when we update it. So please check us out at www.krausebears.blogspot.com. We look forward to seeing you out there too!!
Next - Peter was published! As many of you might know, October was Down syndrome awareness month. Parenting magazine was accepting submissions of our cute little angels. I submitted Peter at the prompting of a friend, and then went out every day looking for him. I finally gave up and forgot to keep checking. Tonight, I decided to go back out and check it out. After looking through well over 100 photos I found him. YEAH!! Peter has been published. So please do check him out. Not sure if there is a way to comment but in my biased way he was of course the cutest of all kids - but I have to admit there were some beautiful children - so he had quite some competition.http://www.parenting.com/gallery/Baby/A-Special-Joy-23-Babies-With-Down-Syndrome/9
Peter's sleep study....well, the last week was a bit crazy. We got a bit of tummy bug - very mild THANK YOU GOD!! He was looking out for us. But, we had little sleep, a lot of stress and way too busy of a schedule. Alexandra had 4 performances of The Lion, The Witch and The Wardrobe - so check out our blog to see her scary face (she was a hag). Tack on the normal school, home, work, etc and we probably should have waited. But, Peter seemed cleared up from his cold so we did it. The first night we attached him to the monitor at about mid night and watched the numbers like obsessed stock brokers. He was very restless and dropping into the 80's quite a bit. After a lot of stress and about 40 minutes we just disconnected the machine. Peter was very restless so we figured he might have a tummy ache. The next morning he just about ejected himself from the crib with quite an explosive bowl movement. That night we tried again. Every time I checked the monitor he was in the upper 80's bounce up to the 90's and then back down. The goal was that he be in the 90's 90% of the time.....I am pretty certain he was not. I was hoping he would pass so that we could go to South Dakota for Thanksgiving without oxygen. I don't think that will be the case - but a couple of tanks just for night is still a lot easier than the big machine and lots of tubes that too many people will trip over. And, honestly, there is some comfort in having oxygen through the winter months. We have much to be thankful for again this year!! Dinner will be very cold if I list out all the wonderful gifts we have been blessed with this last year.
Over the last week or so Peter has had two play groups... it is so nice to spend some time with other parents taking the same journey as us, on their own path. To talk and compare notes and get support from other families that understand how this wonderful, magical journey changes us for the better but at times can be scary and full of uncertainty. Not that we would ever change this gift for another. Check out our blog and you can see some pictures there of his play group friends.
Peter had his 18 month check up today. All was well. He got caught up on shots, and had a flu shot. So 4 in total - and he was very brave through them. Tommy was more upset watching Peter, than Peter was. Once I picked him up he smiled at the lady giving him the shots. Dr. McCaffery was happy with Peter which is always encouraging. He weighed in at 21lb 1oz with diaper - so I would speculate about 21lbs even. He has finally grown a bit at a whooping 30.25"....yeah Peter!! I think this puts him at a steady 50th percentile on the DS boys chart....but.....we are increasing chances of him being over 5 feet tall - which we all know girls like boys that are taller. Now, he is so darn cute that height might not be necessary to find little miss perfect - but, we shall see.
Mr. Peter would like his milk now - so cutting this short.
Love to all - thank you for your kind words of encouragement always.
catherine
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