Sunday, June 29, 2008

Peter - Carepage - June 29th, 2008

Can you believe it is almost July? I feel like summer is going to be over faster than I can blink! This Wednesday will be exactly a year since Peter's open heart surgery....who would have thought that litttle, scrawny, green haired, mohawk Peter Bear would come this far given all his challenges and obstacles. The strapping young man he has become....in training for the Navy Seals or something - Peter is now a tall, happy, screeching, master army crawler. He's really taken off in the last week or so and actually has become quite adventurous. When we are upstairs he hangs out in the master bedroom (the room he shares with John & me!) while I run back and forth to the other rooms putting away laundry. No longer feeling the untold boundary of the doorway, Peter actually ventured out of the room on his own and comando style was super-secretely army crawling down the hall towards the kids room. WOW! That was the most awesome thing to watch. Now....he made it about 5 feet before getting cold feet, upon which he did a graceful pivot, roll, pivot (he get's perfect 10's for that move) and headed back to the master bedroom. Preferring the comfort of the untold boundaries, Peter can pretty much be found in any corner of our very large bedroom, and one time chased me into the bathroom. I need to teach him a lady needs her privacy! In addition to working on his mobility we are taking small steps forward with self feeding (have miles to go - seems like we take one step forward three steps back with feeds - but at least he is eating!). We are also taking baby steps in fine motor skills working on pincher grab and picking up smaller objects - and when sitting putting things in and out of a little pail....right now the thing goes in, we get frustrated that the pail ate the toy, the pail gets a good beating and then gets flung a few feet away during which time the toy falls out and Peter can grab it and we start again. Great indication of cognitive skills if you ask me - when in doubt use brute force! He's also started understanding peek-a-boo and laughing at it, as well as understanding that things are still around if you can't see them. I take the toy he is playing with, hide it under my hand or blanket, and he will lift the blanket or my hand so that he can get to the toy....way to go Peter boy! Last but not least - after weeks of fighting doctors, insurance and more doctors we have Peter's glasses! Now - we are excited because the blue brings out the sparkle in his little eyes....but Peter is not buying that! Most of the time he wants to be cool and wear them around his neck - but we when distracted (hush...don't tell him) we can keep them on for slightly longer periods of time. I am sure in Peter's world it is just one more thing on his face - glasses, oxygen tubes, tape and grips for the tubes, and twice a day steroid inhaler treatments....I'd be crabby about that! But, we figured over time he will get used to the glasses and hopefully that will improve his weak eye. I did post some new pictures - so check out the gallery! Love his scrunchy face as it is the first time we have captured that pose...and I just love when he gives me that face! Lastly, we are working on creating a blog for the whole family. The site is still under construction - but will keep you posted. We hope it will give us a little more freedom in updates, posting of pictures and honestly sharing our whole family - of which of course Peter is a very important and very loved part! Getting late and need to work tomorrow...ugh! Love to all!! catherine

"Mama thinks I look sooo cute in my glasses..."











"....I'm thinking not so much so!"