Peter - Carepages - July 9th, 2007

Just a quick update to let you know that Peter continues to take more steps forward than back...and we are hopeful these steps will get us home in the next couple of days! It sure would be nice to spend some of my maternity leave at home!! Peter's digestive system seems to be on track and the poop keeps coming! Yippee!! We had noticed Peter appeared to be in some discomfort - especially in his throat. As a result he really didn't want to drink from the bottle, and would grimace when swallowing. Yesterday they put him on scheduled Tylenol (as opposed to on demand), but it didn't do the trick. After talking to the docs again today, they put him back on Tylenol with codine - and it seems to be working. He is resting better and during his last feed sucked from the bottle like a champ. Yeah Peter! He was almost off oxygen completely, but the cardiologist wants to leave him on some oxygen for a period of time to ensure the pulmonary hypertension continues to improve (go away). The echocardiagram this morning showed there still is moderate pulmonary hypertension - but they are optimistic it will continue to improve. We will need to work with the cardiologist in Colorado Springs to determine the amount of oxygen and when he can come off of it. We are hopeful no more than 6-8 weeks. Today was a special day as Peter turned two months. It feels like such a long time since he blessed us with his arrival, but it is exciting to know we still have so many more days, weeks, months and years to marvel in the blessing that he is to all of us. John and I marvel at how Peter engages, and is present to those around him - and he is working on moving from little grins and smiles to a full fledged giant smile! You really sense by the way that he looks at you that he is in full relationship with you for that period of time. No doubt God made him very special!! Hugs to all! catherine