Peter is doing well....and no news is good news on the spinal. He did get quite a bump in the amount of chemo he has to get and the first few nights were rough - waking up, dry heaving some, but generally just uncomfortable. Fortunately it has got better and we've got through a couple of nights were he will stay in his bed. John is being the strong one! When Peter wakes up he will give him a drink in his bed and get him to lay back down. So far so good.....we were just talking today that maybe we can think about moving him out of our room some time in the near future. Would be so nice to have an adult bedroom again! We'll think about it again after school is out.
What is most exciting is that little man seems to be really taking off with working on vocalizations! I will swear he hugged me and said "I love you" as he squeezed tight. No prompting in the world has got him to say it again.....but I know he did say it!! He has been using "I do" and "I did" this week, in addition to sounds that are clearly efforts to put one or more words together. Yes, I am still in that overwhelmed state but pushed to start The Listening Program with Peter. I decided to go with the least intense to start off with - 15 minutes a day. We made it (by stretching our imaginations) to 8 minutes on day 1. Then none on day 2 and loud NO!! on day 3. So we decided to not worry about time and logs and stress - and let him just listen as much as he wants until he gets used to the headphones which are huge!! And it seems to be working. We have stayed on the first module that is classical music with nature sounds overlaid. He calls out when he hears the birds, and just listening to the music he starts to make sounds - singing, talking, humming - all good! This is complimented by Peter's imaginary phone conversations that he really enjoys.....he opens up our "I don't have a real place to be stored" drawer in the kitchen, takes out John's old phone and walks around conversing up a storm. When he is done, he closes the phone up and puts it away. Today at church he was really enjoying the music and can clearly sing "alleluia". We enjoyed a breakfast at church and it warmed my heart to see Peter playing with the other kids - chasing, waving, dancing and more chasing!