Monday, May 19, 2008

Peter - Carepage - May 19th, 2008

EXTRA PRAYERS PLEASE!! This will be short as I am at work. Had planned an update this weekend and it didn't happen so here you go. a. Peter had his chest x-ray late last week. By the look on the technician's face I don't think his lungs looked great - but - we didn't get a call asking us to take him in to the hospital so that is good. b. Peter has his 12 month check up tomorrow....will be great to see Dr. McCaffery again. Peter has been not eating well, and I can see he is getting long and slender - so a bit worried about that. He has also been a little crabby lately, so maybe it is teeth. For about 2 months now he has been the "one tooth wonder".....the partner tooth for his one bottom tooth has still not popped through. c. Peter has a swallow test on Thursday at Memorial Hospital. He needs to go in at 11am with an empty tummy. Then they will give him something to drink that they can see where it goes. Very high tech and my mind is shot right now.....will let you know how it goes. d. Peter has his pulmonologist appointment next Tuesday at Childrens. I am quite anxious as I am becoming more and more convinced that he does have some aspiration going on. John and I will be doing his nocturnal test tonight - he had a rough night last night - and will get that sent in. We did a test with our own machine last night and for the most part Peter was maintaining sats around 90 to 93%. So we shall see what they think about that. So with all Peter has in the next week or so, please send extra prayers his way. I know God has given us so many miracles, but we are asking for another. And maybe this time next year the oxygen tubes will be a thing of the past. I must confess that on Friday I was quite emotional. Friday was May 16th....exactly one year from the day we thought we would loose Peter, did a quick baptism at the hospital and rushed him up to Denver. Only to of course end the day with Peter in our arms for the first time since he was born. Wow! Look at how much has happened in a year! We hope this next year brings more healing and less drama! Must run back to work. Love, catherine ps. Still no glasses for Peter - fighting the insurance and I work for them! GRRRR.....but will keep you posted.